Source: Centers for Disease Control and Prevention — Content from the Centers for Disease Control and Prevention (public domain).
Join the National ALS Registry
ALS research counts on you! Be counted and join the fight against ALS.
Nov. 12, 2024
Tell your story and take the risk factor surveys and help researchers learn more about ALS.
Nov. 14, 2024
National ALS Registry Dashboard
National ALS Registry Dashboard
June 9, 2025
Currently Active Clinical Trials open for recruitment
Nov. 12, 2024
Information for Patients and Researchers
National ALS Registry for Providers and Researchers
A platform to connect people living with ALS with clinicians and researchers.
Nov. 12, 2024
External research funded by ALS Registry
Nov. 12, 2024
Additional Resources for People Living with ALS
Learn about the function of the National ALS Biorepository
Publications and reports from the National ALS Registry and researchers using Registry resources
Sign up for and read ALS Registry Newsletters
Web archive of the National ALS Registry’s Annual Meeting reports.
List of conferences and events the National ASL Registry has attended
Tell us about Your ALS Story
Frequently Asked Questions about ALS and the Registry
Registry Partners
Organizations that Support People Living with ALS
The National ALS Registry partners with organizations to support ALS. Learn more about them here.
Nov. 12, 2024
National ALS Registry Materials
Promotional materials and graphics for the National ALS Registry
Nov. 12, 2024
Hear why National ALS Registry is important in fight against ALS
Nov. 12, 2024